Towards Meaningful Connections with Participants: Assessing two-way engagement strategies in clinical research.
ALIGN VIC Node member, Matilda Haas, and Rosie Brown, have authored a white paper with CT:IQ which sets out a number of recommendation to inform the development of new approaches to engage participants in clinical research. Read the paper here.
Guidelines for Community Involvement in Genomic Research
Involve Australian and Australian Genomics have partnered with patient support and advocacy groups, patients and carers, people who involve community in their research, interested members of the public, genomic researchers and healthcare professionals to develop community involvement guidelines for genomic researchers. For further details and to download the document, please see the Australian Genomics website.
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