Lowitja Institute has published
‘Taking Control of Our Data: A Discussion Paper on Indigenous Data Governance for Aboriginal and Torres Strait Islander People and Communities‘.
Developed by the Maiam nayri Wingara Indigenous Data Sovereignty Collective, a network of leading Aboriginal and Torres Strait Islander researchers who advocate for the rights of Aboriginal and Torres Strait Islander peoples and nations in relation to data, this paper aims to support Aboriginal and Torres Strait Islander communities and organisations to realise Indigenous Data Sovereignty by putting Indigenous Data Governance into practice.
You can access the Discussion Paper on the Lowitja Institute website here– link will open in a new window.
Rare Voices Australia, through extensive consultation, have developed “Rare Diseases Resources for the Aboriginal and Torres Strait Islander Community”.
If you are interested to understand how these resources were developed, you can see the “Developing the Rare Disease Resource Collection for Aboriginal and Torres Strait Islander Community” webinar.
A short video developed by the National Centre for Indigenous Genomics (NCIG), describing the principles of genetics and genomics and describing their repatriation program for Indigenous samples.
A short video explaining the things you should consider before buying a DNA test
A short video developed by QIMR Berghofer Medical Research Institute, explaining genetics and genomics for First Nation's Australians.
National Centre for Indigenous Genomics Inaugural Oration 2022, delivered by Aunty Pat Anderson, Professor Alex Brown, and Professor Brian P Schmidt
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